Linda A. Johnson AP Medical Writer Published 8:29 PM EDT May 24, 2019 U.S. regulators have approved the most expensive medicine ever, for a rare disorder that destroys a baby’s muscle control and kills nearly all of those with the most common type of the disease within a couple of years. The treatment is priced at $2.125 million. Out-of-pocket costs for patients will vary based on insurance coverage. The medicine, sold by the Swiss drugmaker Novartis, is a gene therapy that treats an inherited condition called spinal muscular atrophy. The treatment targets a defective gene that weakens a child’s muscles so dramatically that they become unable to move, and eventually unable to swallow or breathe. It strikes about 400 babies born in the U.S. each year. The Food and Drug Administration on Friday approved the treatment, called Zolgensma, for all children under age 2 who are confirmed by a genetic test to have any of the three types of the disease. The therapy is a … [Read more...] about At $2M, priciest ever medicine treats fatal genetic disease
Developing new medicines
Mitch Albom Detroit Free Press Published 12:00 AM EDT Mar 31, 2019 Not long ago, we were talking about living to 120. Remember? Science and medicine were advancing so rapidly, we figured to double the life expectancy of our grandparents. What would we do with all those extra years? Apparently, we can stop worrying about that. At least in America. The latest statistics show life expectancy in this country will drop for the third straight year. The last time that happened was reportedly 100 years ago, when we were in the middle of World War I and the worst flu pandemic in recorded history. It’s not that our scientists have hit a wall. It’s not that new medicines aren’t working. In fact, for the rest of what we call the “developed world,” the numbers are going up. But from sea to shining sea here in the U.S., they are dropping, largely due to what some have dubbed “the deaths of despair,” drug-related fatalities, liver cirrhosis … [Read more...] about Mitch Albom: Why is living shorter, dying sooner a new trend?
Vietnam signed over 50 cooperation agreements and treaties with countries, territories, and international sports organisations around the world during 1998 to 2016, a period that has seen the most thriving development in the sporting sector, said vice head of the Vietnam Sports Administration (VSA) Le Hoang Yen. Vietnamese players cheer the second goal in the first-leg final of the ASEAN Football Federation (AFF) Suzuki Cup 2018 in Kuala Lumpur, Malaysia on December 11 In a recent interview granted to the Vietnam News Agency, Yen stressed that due attention has been paid to promoting sports development and physical education, focusing on expanding international cooperation – one of the top priorities towards realising goals set in the national strategy for development of physical education and sports to 2020, with a vision to 2030. With its efforts to enhance international cooperation and integration in the period, Vietnam was credited by international sports … [Read more...] about International cooperation: key to national sports development strategy
Visit The Boston Globe Share on Twitter Share on Facebook Comment on this Scroll to top of page Martin Finucane Globe Staff December 10, 2018 Two new scientific studies are taking a little more of the sizzle out of steak.Researchers at the Cleveland Clinic say they’ve found that a diet rich in red meat as the primary protein source increases people’s circulating levels of a substance known as TMAO, trimethlamine N-oxide. Previous research has shown TMAO can lead to the development of cardiovascular disease, including heart attacks and strokes.The findings “provide further evidence for how dietary interventions may be an effective treatment strategy to reduce TMAO levels and lower subsequent risk of heart disease,” Dr. Alan Hazen, chairman of the department of cellular and molecular medicine in the Cleveland Clinic’s Lerner Research Institute, who has been studying TMAO, said in a statement. Advertisement One study was … [Read more...] about 2 new studies take a little more sizzle out of red meat
Viet Nam News Khoa Thư HÀ NỘI — An interview conducted with Nancy Zhou on a Vietnamese online news outlet I read a day before meeting her in a person gave me the wrong impression. In my mind, I imagined she had lived in Việt Nam for a long time and gained an insight into the country and its people. In fact, she had had just finished a ten-month assignment at the Vietnamese Women’s Museum (VWM) as a social media advisor under the Australian Volunteer Programme (AVP). “My role at the museum was to help them promote their image in the national and international levels,” she said. “During my time there, there were some exhibitions on Vietnamese female scientists, domestic violence and sustainability held at the museum.” In the last five months, Zhou has been involved in organising a collaborative exhibition between VWM, the Australian Embassy and Australian Artist Bianca Hoffrichter. Entitled “Rethink”, the … [Read more...] about Australian friends support local capacity development